Email: support@vhl-uk-ireland.org
Facebook Message: facebook.com/VHL.UK.Ireland
VHL UK-IRL
The Cure for Cancer is in our Genes
Since June 2021, VHL UK/Ireland has been working with NICE (National Institute for Health and Care Excellence) and Merck/MSD (the pharmaceutical company which has developed belzutifan (Welireg), to assist in …
VHL UK Ireland has granted £60,000* to Eamonn Maher, Head of the Department of Medical Genetics to establish a national registry for VHL disease and related disorders. After a rigorous …
We are pleased to announce that VHL UK/Ireland has recently become a member of Eurordis – Rare Diseases Europe https://www.eurordis.org/. It gives us visibility in Europe as the UK and …
VHL UK Ireland has granted £60,000* to Eammon Maher, Head of the Department of Medical Genetics for this study which is paramount to the understanding of genetic conditions such as …
The VHL Alliance published in its Summer 2022 Newsletter an overview: ALTERATIONS IN THE ELOC GENE MAY CAUSE VHL DISEASE By Dr. Amit Tirosh, Sheba Medical Center. “The diagnosis of …
VHL PATIENT EVENT. Sat 26th November. Addenbrookes, Cambridge. 10.am – 4pm. Welcome to VHL, HLRCC and BHD patients, families and friends throughout the UK and Ireland (and beyond!). Event includes …
Supporting VHL, BHD & HLRCC in UK & Ireland
