We are pleased to announce that VHL UK/Ireland has recently become a member of Eurordis – Rare Diseases Europe https://www.eurordis.org/.
It gives us visibility in Europe as the UK and Ireland support charity.
Eurordis’ s mission statement is We empower, partner, and advocate for people living with a rare disease in Europe. It has a thriving community of over 1000 patient organisations.
100,000 genomes project VHL study
