The content of this page is curated from The VHL Alliance Research | The Current State Of VHL Research
The VHL Alliance is constantly striving to increase the level of VHL research. Once considered only “an obscure medical curiosity”, in reality, VHL is becoming one of the most important diseases in the study of cancer.
Latest Research
Understanding and finding a cure for VHL helps us find a cure for cancer since the same gene is involved in many types of cancer. The VHLA’s collaborations can help you keep abreast of the latest research.
Read the latest VHL Research Here
Explore our curated database of Von Hippel-Lindau (VHL) research papers, designed to support patients, families, researchers, and healthcare professionals. You can access the full collection directly on the Zotero platform by clicking the button below.
MyVHL
Patient Natural History Study
VHLA partnered with the National Organization for Rare Diseases (NORD) to develop the Natural History Patient Study (also known as the Cancer is in Our Genes International Patient Database – CGIP) to help researchers better understand VHL and other forms of cancer, with the goal of finding better treatments, and ultimately, a cure.
Stay Updated
In order to assist you in providing the best care possible to people living with VHL, the VHL Alliance would like to keep you Up-to-Date on the newest VHL research, diagnosis, and treatment.