Email: support@vhl-uk-ireland.org
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VHL UK-IRL

The Cure for Cancer is in our Genes

Welcome to the VHL UK/Ireland website

Patient Support and Advice, Funding Research and Public Education for
von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.

About Us
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What is VHL (von Hippel- Lindau) disease?

Willem Dafoe Talks About VHL

Learn More

Looking for information and support ?

Visit our VHL Disease Information and Support page for a list of quick links to affiliated support groups.

Visit our VHL Information Downloads to access our detailed fact sheets.

Support
Downloads

Latest News

Random Quote

You may see me struggle, but you will never see me quit!
VHL UK-IRL
2020-12-16T11:43:20+00:00
You may see me struggle, but you will never see me quit!

Remember, you have survived everything up to this point. The best days are yet to come.
There are still things you haven’t experienced. YOU CAN DO THIS
VHL UK-IRL
2020-12-16T11:43:55+00:00
Remember, you have survived everything up to this point. The best days are yet to come. There are still things you haven’t experienced. YOU CAN DO THIS

When life gives you a hundred reasons to break down and cry,
show life that you have a thousand reasons to smile and laugh. Stay Strong
VHL UK-IRL
2020-12-16T11:44:36+00:00
When life gives you a hundred reasons to break down and cry, show life that you have a thousand reasons to smile and laugh. Stay Strong

I don’t want my pain and struggle to make me a victim. I want my battle to make me someone else’s hero
VHL UK-IRL
2020-12-16T11:45:12+00:00
I don’t want my pain and struggle to make me a victim. I want my battle to make me someone else’s hero

You're a WARRIOR, Warriors don’t give up and they don’t back down.
Pick up your sword and shield and FIGHT
VHL UK-IRL
2020-12-16T11:46:20+00:00
You're a WARRIOR, Warriors don’t give up and they don’t back down. Pick up your sword and shield and FIGHT

You never know how strong you are until being strong is the only choice you have
VHL UK-IRL
2020-12-16T11:47:05+00:00
You never know how strong you are until being strong is the only choice you have

Get up every morning and remind yourself, I CAN DO THIS
VHL UK-IRL
2021-01-25T10:11:57+00:00
Get up every morning and remind yourself, I CAN DO THIS

No matter how you feel. Get up, Dress up, Show up and NEVER GIVE UP
VHL UK-IRL
2021-01-25T10:13:35+00:00
No matter how you feel. Get up, Dress up, Show up and NEVER GIVE UP

Sometimes the strength within you is not a big fiery flame for all to see,
it is just a tiny spark that whispers ever so softly "You got this, Keep going"
VHL UK-IRL
2021-01-25T10:15:26+00:00
Sometimes the strength within you is not a big fiery flame for all to see, it is just a tiny spark that whispers ever so softly "You got this, Keep going"

Anyone can give up, it’s the easiest thing to do. But to hold it together when everyone else
would understand if you fell apart, THAT IS TRUE STRENGTH.
VHL UK-IRL
2021-01-25T10:16:42+00:00
Anyone can give up, it’s the easiest thing to do. But to hold it together when everyone else would understand if you fell apart, THAT IS TRUE STRENGTH.

Hope is the only thing stronger than fear
VHL UK-IRL
2021-01-25T10:17:19+00:00
Hope is the only thing stronger than fear

What feels like the end, is often a new beginning
VHL UK-IRL
2021-01-25T10:17:53+00:00
What feels like the end, is often a new beginning

It always seems impossible until it’s done
VHL UK-IRL
2021-01-25T10:19:09+00:00
It always seems impossible until it’s done

Don’t be ashamed of your story, IT WILL INSPIRE OTHERS
VHL UK-IRL
2021-01-25T10:19:43+00:00
Don’t be ashamed of your story, IT WILL INSPIRE OTHERS

I am thankful for my struggle before without it, I wouldn’t have stumbled across my strength
VHL UK-IRL
2021-01-25T10:20:20+00:00
I am thankful for my struggle before without it, I wouldn’t have stumbled across my strength

Hey little fighter, soon things will be brighter
VHL UK-IRL
2021-01-25T10:20:57+00:00
Hey little fighter, soon things will be brighter

One day you will tell your story of how you overcame what you have been through
and it will be someone else's survival guide
VHL UK-IRL
2021-01-25T10:22:37+00:00
One day you will tell your story of how you overcame what you have been through and it will be someone else's survival guide

One of the happiest moments ever id when you find the courage to let go
of what you can’t change
VHL UK-IRL
2021-01-25T10:23:28+00:00
One of the happiest moments ever id when you find the courage to let go of what you can’t change

Strength isn’t about how much you can handle before you break,
it’s about how much you can handle after you break
VHL UK-IRL
2021-01-25T10:24:32+00:00
Strength isn’t about how much you can handle before you break, it’s about how much you can handle after you break

You are a SURVIVOR, You are a WARRIOR. You are a VHL WARRIOR
VHL UK-IRL
2021-01-25T10:25:02+00:00
You are a SURVIVOR, You are a WARRIOR. You are a VHL WARRIOR

VHL is your diagnosis not your DESTINY
VHL UK-IRL
2021-01-25T10:25:39+00:00
VHL is your diagnosis not your DESTINY
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VHL UK-IRL

How can I fundraise for VHL UK/Ireland ?

There are many ways to raise essential funds for the charity, no matter how big or small it all helps us to reach our goal!

Whether it is a bake sale, sponsored half marathon, a night walk, a work place
“dress down” day, a charity coffee morning or a sky dive,  please follow our
step-by-step guide below, which explains everything you need to know.

Find Out More

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