Join us at the Mercure Sheffield Parkway Hotel for a day dedicated to supporting individuals with VHL in the UK and Ireland. This in person event will be filled with informative sessions by clinical experts, on some very important topics including Belzutifan and dealing with the mental burden of a chronic illness. The day will …

Back by popular demand, we are pleased to announce the date of this year's VHL Virtual Pub Quiz. Hosted by one of our trustees Frankie & her husband Dean, it's sure to be a fun night!

VHLA is hosting a global MyVHL Day where people affected by VHL will (virtually) unite for a common cause: participating in MyVHL and helping VHL researchers learn more about the disease and it's impact.  Be a part of a sea of change by participating in MyVHL.