Events

Join leading researchers, clinicians, and advocates for groundbreaking discussions on VHL disease management and innovation. The 17th International VHL Medical Symposium, hosted by the VHL Alliance and Mass General Brigham, will bring scientists, clinicians, and advocates together for…

Location – Holiday Inn Birmingham International Airport, Coventry Road, Solihull, Birmingham, B26 3QW Start time – arrival from 9am Finish time- approx 4.30pm Come and listen to an array of expert speakers and meet other VHL…

Our call topic: We will be discussing basic blindness skills. If you are blind or visually impaired as a result of VHL, we welcome you to participate on the low and no vision call. There will…

Call topic:Traditions, Holidays, and Special Occasions with VHLSharing experiences and strategies for navigating family gatherings, travel, celebrations, and expectations during special times of the year. If you would like to join the call list please click…

Our call topic: What questions do you get asked most about blindness, and what are your answers? If you are blind or visually impaired as a result of VHL, we welcome you to participate on the…

Call topic:Lessons Learned: Wisdom from the VHL Journey A reflective discussion on personal growth, unexpected strengths, helpful perspectives, and advice participants would share with someone newly diagnosed or new to caregiving. If you would like to…

Our call topic: Shopping as a blind person. If you are blind or visually impaired as a result of VHL, we welcome you to participate on the low and no vision call. There will be time…