Board of Trustees
EVERY member of the Charity is a VOLUNTEER, giving their own time freely and without seeking any form of recompense.
ALL members are patients living with, and/ or carers for those with, VHL or HLRCC
Chair & belzutifan Lead
Secretary
Special Advisor
Treasurer / Finance Lead
Marketing Lead
Patient Liaison
Clinical Liaison
Scientific Adviser
Operations Lead
Fundraising Lead
–
Regulatory & Governance Lead
Merchandise / Shop Manager
Mark Lodge
TBA
Graham Lovitt
Janice Hepworth
Roxanne Bonin
Nancy Molyneaux
Sue Carless (wef Feb 2027)
Tony Horton
Tantara Fox-Stillwell
Frankie Goddard
John Hepworth
Kim Vaughan
Joyce Bonin
and, of course, “Charlie” the Mascot
