Belzutifan Ireland – NCPE assessment
The NCPE has updated their website this week with the outcome of its assessment of Belzutifan, which can be viewed here: Belzutifan (Welireg®). HTA ID: 25020 | National Centre for …
Legacy Donations
This text has been added to the bottom of our donate page We have had several requests for how to handle legacy donations. Please email us to discuss further. The …
Capturing the ‘real-world’ experience of belzutifan
VHL UK Ireland has granted £41,000 to Crick Insitute Researchers – Dr. Scott Shepherd, Prof. Samra Turajlic and Prof. William Drake Background Belzutifan is transforming the management of individuals with …
Clinician Contact List (WEB) – MARCH 2025
Thanks to our Co-Chair Kat Chapman there is now an updated clinician contact list that can accessed and downloaded from the VHL Information Downloads Page
Christmas Market 2024
The Christmas Market organised by Jordan Lea on 14th- 15th December 2024 raised for VHL UK/Ireland £525
Belzutifan – Frequently Asked Questions
These FAQs are published by VHL UK/Ireland in partnership with Dr Scott Shepard. Last Updated: September 2025 1. What is VHL? Von Hippel-Lindau disease (VHL) is a devastating, rare, life-long, …
