SMC Approval of belzutifan(Welireg) for selected VHL Patients
VHL UK/Ireland is delighted to hear the wonderful news from the SMC today, that certain qualifying VHL patients in Scotland will be the first in Europe to be able to …
Charity Ball held in support of VHL UK/Ireland & Cancer 52
Saturday 30th September saw Vixstars Events host a charity ball at Holiday Inn in Peterborough. With nearly 250 attendees the night was close to being a sell-out & great fun …
New Search Box / Button
On a PC, there is now a new Search Button on top of the Tool Bar of every Page. On a phone, there is a new Search Box above Home. …
Pre-implantation genetic testing for monogenic disorders (PGT-M)
Pre-implantation genetic testing for monogenic disorders (PGT-M) – Previously Pre-implantation genetic diagnosis (PGD). VHL, HLRCC and BHD are all approved conditions. Note BHD is not in the online list but …
VHL Awareness Month – Prof. Eamonn Maher Blog
May 2023 includes the 30th (Pearl!) anniversary of the identification of the VHL gene! This landmark event marked the culmination of a many years of research but was also the …
