Belzutifan/Welireg Appraisal – Your Charity Needs YOU!
As you are aware, we are working to try to get NHS funding approval for belzutifan/welireg, and we need your help, please! The NICE appraisal committee needs to know just …
UK Registry for VHL disease and other Inherited kidney tumour syndromes
VHL UK Ireland has granted £60,000* to Eamonn Maher, Head of the Department of Medical Genetics to establish a national registry for VHL disease and related disorders. After a rigorous …
Published Articles from the 100,000 genomes project VHL study
The VHL Alliance published in its Summer 2022 Newsletter an overview: ALTERATIONS IN THE ELOC GENE MAY CAUSE VHL DISEASE By Dr. Amit Tirosh, Sheba Medical Center. “The diagnosis of …
Vote for a Movement for Goods award
Please Vote Just imagine what we could do with a £1,000 donation. Designed to give eligible charities in the UK and Republic of Ireland the financial assistance they need to …
VHL UK/Ireland Annual General Meeting
Thursday 17th June 2021 @ 19.30 The current trustees step down and offer to be re-elected. Accounts Summary – Janice Hepworth Chair’s Annual Report – Graham Lovitt Followed by short …
