What is VHL Disease?
VHL Awareness Month supports von Hippel Lindau disease. VHL is a lifelong
condition characterised by blood vessel tumours in up to ten areas of the body
which can be benign or cancerous. Read More – What is VHL disease?
How can I get involved with VHL Awareness Month?
1. Spread the message & share the love!
Spread the message & share the love on social media with these tags
#vhlawarenessmonth #vhlawareness #vhlukireland #vhlwarrior
Share “Your Story” – and the reasons why you are raising awareness
remember you can always Contact Us to add your story to our site!
2. Wear your pin badge & VHL UK Ireland merchandise
Visit our shop and grab your pin badge / wristband & merchandise to wear and show your support.
With every t-shirt, vest, hoodie purchased in May, you will receive a FREE pin badge!
Send in your photo of you wearing your pin badge, wristband or merchandise to us at support@vhl-uk-ireland.org and we will add it to our “Spreading Awareness of VHL Disease” Album on our Facebook and our website.
Share your photo on your own social media profiles with tags #vhlwarrior #vhlawareness #vhlawarenessmonth #vhlukireland
Items in our shop are available to be shipped worldwide. Visit the Shop to find out more
3. Fundraise & raise awareness at the same time!
Whether it’s a coffee morning, a bake sale, sponsored run, workplace “dress down day” or even a sky dive! Anything you want to do that is fun is a fantastic opportunity to raise awareness for VHL Disease and the funds at the same time.
Visit our Fundraise page for everything you need for a successful fundraiser.
You will find everything you need including fundraising forms. Brilliant to
use around the workplace and on notice boards.
4. Donate! Collect funds and donate directly to VHL UK Ireland
Donations are what keep the charity alive and what fund essential genetic research into helping us reach our goal to find a cure! We are a small charity and have already helped many research opportunities in the UK, brought together so many patients who suffer this disease, helped many patients and their carers in understanding what this disease is and support them. We can’t do this without you!
