The HLRCC Family Alliance is a project of the International VHL Alliance and actively supports HLRCC patients and their families through its website hlrccinfo.org/, Facebook Page and Smart Patients.
In addition, there is a private Facebook Group with over 850 members world-wide which is joined by email to admin@hlrccinfo.org in order to receive an invitation. Go to Page https://hlrccinfo.org/facebook/ for more information.
The HLRCC Family Alliance has published a comprehensive HLRCC Handbook which is kept up-to-date on its website.
