Email: support@vhl-uk-ireland.org
Facebook Message: facebook.com/VHL.UK.Ireland
VHL UK-IRL
The Cure for Cancer is in our Genes
VHL UK/Ireland is a volunteer-led charity supporting individuals and families affected by von Hippel-Lindau Syndrome (VHL) and related rare genetic conditions. We provide information, peer support, advocacy, and fund vital …
Our next Annual General Meeting will be on Thursday 29th May. The agenda of this meeting will be added to our website & the committee meeting will follow on from …
We were thrilled to welcome over 30 attendees to our VHL Patient Support Day, held at the Mercure Sheffield Parkway Hotel this May. It was a day filled with connection, …
We’re excited to launch our brand-new VHL Warrior merchandise range – a bold collection of sweatshirts, t-shirts, and hats designed to help you show your support for the VHL community …
VHL UK/Ireland is excited to share ‘A Poem For Our Warriors’. The video consists of real VHL warriors and family members, all affected by the rare genetic condition. Featuring over …
VHL UK/Ireland and Cancer52 have been selected as the chosen charities for this years Vixstar Charity Ball. The event will be held on Saturday 30th September in Peterborough and expects …
Supporting VHL, BHD & HLRCC in UK & Ireland
