VHL Awareness Month – May 2021
Join us in May as we celebrate globally VHL Awareness Month. VHL UK/Ireland are encouraging patients, families and supporters to get involved in a number of ways, see below for …
VHL UK Ireland
VHL Screening Guidelines in the UK
Read the guidelines from 2018 on VHL Screening presented by Dr Richard Sandford, Eamonn Maher and Fiona Lalloo. VHL should be suspected in individuals with or without a family history …
Annual Patient Support Group Held at Addenbrooke’s, Cambridge
Over 35 patients, family members and Genetics staff attending the 2018 VHL UK/Ireland patient event at the Clinical School within Addenbrooke’s Hospital, Cambridge on Saturday 17th November 2018. Doors opened …
VHL Research Patient Day
On the 30th June a VHL UK/Ireland support and information meeting was held in the Bateson Centre in the University of Sheffield. A group headed by Dr. Freek van Eeden, …
Second Support Group Meeting held in Saint Mary’s Hospital, Manchester
30 people + 1 dog attended our second arranged support meeting at Saint Mary’s Hospital, Manchester. – Connect with other patients and families– Patients, family and friends welcome– Lunch and …
