Join us in May as we celebrate globally VHL Awareness Month. VHL UK/Ireland are encouraging patients, families and supporters to get involved in a number of ways, see below for some events we’re hosting & ways you can get involved;
SAVE THE DATES
– Virtual Pub Quiz, Thursday 27th May 8pm BST
– Virtual Coffee Morning, Sunday 29th May 11am BST
– #VforVHL, throughout May. Run, walk or cycle 5k & upload your #VforVHL photo. Nominate two others to join in too!
– Register for MyVHL patient data registry (databank.vhl.org/), Saturday 22nd May
– Look out for VHL Alliance events too throughout the month – Mom’s Day Run, Warrior Call & Lunar Challenge
SPREAD #VHLAWARENESS
– Add your #vhlawareness Facebook Frame
– Wear your VHL merchandise
– Share #vhlawareness posts
– Share your story
