VHL UK Ireland
Latest VHL Handbook Available
The VHL Handbook is an important reference handbook for people living with von Hippel-Lindau, their families, loved ones, and their medical team.
Written in “lay language”, the handbook contains the most up-to-date information about diagnosing and treating VHL. It is an essential guidebook for living and thriving with VHL.
Vote for a Movement for Goods award
Please Vote Just imagine what we could do with a £1,000 donation. Designed to give eligible charities in the UK and Republic of Ireland the financial assistance they need to …
VHL UK/Ireland Annual General Meeting
Thursday 17th June 2021 @ 19.30 The current trustees step down and offer to be re-elected. Accounts Summary – Janice Hepworth Chair’s Annual Report – Graham Lovitt Followed by short …
VHL UK/Ireland Events Calendar
Today the website got a new page https://vhl-uk-ireland.org/events/ If anyone is organising an event for the charity please email website@vhl-uk-ireland.org with all the detail so that it can be added. …
Two additional Grant Awards of £20,000 each to existing projects
VHL UK/Ireland has made two additional continuation grant awards of £20,000 each to the UK Registry for VHL disease and other Inherited kidney tumour syndromes and 100,000 genomes project VHL …
