SMC Approval of belzutifan(Welireg) for selected VHL Patients
VHL UK/Ireland is delighted to hear the wonderful news from the SMC today, that certain qualifying VHL patients in Scotland will be the first in Europe to be able to …
VHL UK Ireland
Charity Ball held in support of VHL UK/Ireland & Cancer 52
Saturday 30th September saw Vixstars Events host a charity ball at Holiday Inn in Peterborough. With nearly 250 attendees the night was close to being a sell-out & great fun …
New Search Box / Button
On a PC, there is now a new Search Button on top of the Tool Bar of every Page. On a phone, there is a new Search Box above Home. …
Georgia’s Story
One brain tumour, two spine tumours, one inner ear tumour, one pancreatic tumour and several eye tumours. It’s not a rundown anyone would want to list, but it’s the reality …
VHL Research at the Francis Crick Institute
The charity has recently made a £20,000 donation to the Francis Crick Institute to help with their research into the VHL gene. This was made possible by a large fund-raising donation from …
