Wear blue for VHL day
As part of VHL Awareness Month we come together celebrating VHL with wearing blue to support and raise awareness to those who suffer with the disease. On Saturday 10th May …
Georgia’s Story
One brain tumour, two spine tumours, one inner ear tumour, one pancreatic tumour and several eye tumours. It’s not a rundown anyone would want to list, but it’s the reality …
VHL Research at the Francis Crick Institute
The charity has recently made a £20,000 donation to the Francis Crick Institute to help with their research into the VHL gene. This was made possible by a large fund-raising donation from …
Kim’s Story
I noticed sudden vision changes around the age of 14 and was diagnosed with VHL when I was 15. It took 12 months, and many doctors, for me to get a diagnosis. My family were …
Sheela’s Story
My story has lots of ups and downs, but more importantly I wanted to show what living with VHL has been like for me. It has taken me weeks to …
