Email: support@vhl-uk-ireland.org
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VHL UK-IRL
The Cure for Cancer is in our Genes
Foreword: although the following article discusses family planning options for VHL syndrome, the same processes and treatments also apply to HLRCC (FH gene) and BHD (FLCN gene). Please consult a …
March 1st, 2024 – A meeting of the “Inherited Renal Cancer Syndromes” Rare Disease Group of the RaDaR Registry was held recently and attended by RDG group members including Prof …
As a small boy growing up in the 1960s there was never any reason given why my mother, an ex-ballet dancer, was in a wheelchair. No one, including her many …
Hi everyone, Frankie here 🙂 The other week I had the pleasure of chatting with Professor Marion McAllister (Senior Lecturer in Genetic Counselling & Course Director, MSc in Genetic Counselling …
Coping with VHL: The Unseen Struggles Written by Lily Meyers A diagnosis of any kind can be shocking. It takes time to process, but a rare disease like von Hippel-Lindau …
VHL UK Ireland has granted £35,000 to Professor William Drake Consultant Physician/Professor of Clinical Endocrinology at St Bartholomew’s Hospital. An overview from Professor Drake:“Our research endeavours focus on the intricate …
Supporting VHL, BHD & HLRCC in UK & Ireland
