An Insightful VHL Patient Support Day – Sheffield, May 2025
We were thrilled to welcome over 30 attendees to our VHL Patient Support Day, held at the Mercure Sheffield Parkway Hotel this May. It was a day filled with connection, …
VHL UK Ireland
Introducing the New VHL Warrior Merchandise Range
We’re excited to launch our brand-new VHL Warrior merchandise range – a bold collection of sweatshirts, t-shirts, and hats designed to help you show your support for the VHL community …
Capturing the ‘real-world’ experience of belzutifan
VHL UK Ireland has granted £41,000 to Crick Insitute Researchers – Dr. Scott Shepherd, Prof. Samra Turajlic and Prof. William Drake Background Belzutifan is transforming the management of individuals with …
Clinician Contact List (WEB) – MARCH 2025
Thanks to our Co-Chair Kat Chapman there is now an updated clinician contact list that can accessed and downloaded from the VHL Information Downloads Page
Christmas Market 2024
The Christmas Market organised by Jordan Lea on 14th- 15th December 2024 raised for VHL UK/Ireland £525
Belzutifan – Frequently Asked Questions
These FAQs are published by VHL UK/Ireland in partnership with Dr Scott Shepard. Last Updated: September 2025 1. What is VHL? Von Hippel-Lindau disease (VHL) is a devastating, rare, life-long, …
