Belzutifan/Welireg Appraisal – Your Charity Needs YOU!
As you are aware, we are working to try to get NHS funding approval for belzutifan/welireg, and we need your help, please! The NICE appraisal committee needs to know just …
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Eurordis Membership
We are pleased to announce that VHL UK/Ireland has recently become a member of Eurordis – Rare Diseases Europe https://www.eurordis.org/. It gives us visibility in Europe as the UK and …
Second Support Group Meeting held in Saint Mary’s Hospital, Manchester
30 people + 1 dog attended our second arranged support meeting at Saint Mary’s Hospital, Manchester. – Connect with other patients and families– Patients, family and friends welcome– Lunch and …
First Support Group Meeting held in Guy’s Hospital, London
28 people attended our first arranged support meeting at Guy’s Hospital, London. 10.30 – Session opens – Registration – Tea & coffee provided11.00 – Welcome11.00 – Pre-implantation Genetic Diagnosis by …
