Join us in May as we celebrate globally VHL Awareness Month. VHL UK/Ireland are encouraging patients, families and supporters to get involved in a number of ways, including: – Virtual Pub Quiz – Fri 8 May 8PM BST – Virtual Coffee Morning Sun 24 May AM BST – Virtual Bingo – Sat 20 May 8PM […]
VHL UK Ireland has granted £40,000 to this study which is paramount to the understanding of genetic conditions such as VHL and other kidney genes. Please find a progress update below.
VHL UK Ireland have granted an amazing £40,000 for this project. Please read below for an update on this fantastic project. It’s projects and research like this that will help others in the future!
A HUGE thank you to all who contributed to the success of the 2019 charity ball. An amazing £7000 was raised for VHL UK/Ireland and Alzheimers UK!
VHL UK/Ireland Awareness and Support Video. Our mission is to raise funds for research, to support those affected by VHL HLRCC and BHD, and to raise awareness. The cure for cancer is in our genes. Together we will find the cure. https://www.vhl-uk-ireland.org
Heading for a European Christmas market or just fancy some Winter sun? Click via @GiveasyouLive when you book travel, hotel rooms and much more and you’ll earn FREE donations for us!
An exciting new website for VHL UK/Ireland coming soon! Here is a sneaky peak! vhlwarrior vhlukireland vhlawareness ❤️
Did you know we can post get well soon cards to patients and vhlwarriors on behalf of the charity? Simply email firstname.lastname@example.org or private message us with name and address details of where you would like it to go.
*SAVE THE DATE* Saturday 16th November 2019 we will be holding our 5th annual Patient Event in Birmingham. The day will include information and updates from genetics counsellors, clinicians and charity members, with the opportunity to meet and connect with other patients. Lunch and refreshments will be provided. Location will be confirmed, however is likely […]
Read the guidelines from 2018 on VHL Screening presented by Dr Richard Sandford, Eamonn Maher and Fiona Lalloo.