2026.10.03 Take a look around our new website. It is packed with loads of helpful features for patients, carers. clinicians and others who have a keen interest in all things “VHL”
The menu bar is split into different “zones”- the key “zones” are:
“What is VHL” which hopefully does what it says on the tin. Every patient will learn something new here about VHL
“Patient” contains everything you might want to know: from how to find a VHL clinic, to accessing the patient handbook and Active Surveillance Guidelines. It also has pages about Family Planning and Wellbeing for Living with VHL. And we have some new tools and resources including our Events page and Videos from world leading experts on VHL. And we round off by showing you how to connect with other VHL patients via our Facebook page & Patient / Carer chat group
“Clinicians” provides a home for clinicians and researchers, linking in to Events, Videos form world-leading experts and the latest Research & Clinical Trials
“Research”” allows patients and otters to access a full library of the most update published research papers and find out about current clinical trials
“Support Us” – allows you to find out how you can support us – from just giving a few hours or a few pounds, to volunteering for specific projects or substantial fundraising
Hopefully, there is something for everyone
Thankyou for helping us to work to find a cure for cancer through VHL Research