Poem:
PERSON 1: Von Hippel-Lindau, VHL for short,
PERSON 2: A rare condition we need your support.
PERSON 3: A genetic mutation that leaves a scar,
PERSON 4: For 1 in 36,000, fighting here and afar.
PERSON 5: Tumours arising, so suddenly,
PERSON 6: Blood vessels growing where they shouldn’t be.
PERSON 7: The eyes, the brain, the kidneys too,
PERSON 8: Nothing is safe, no tissue immune.
PERSON 9: The symptoms can vary, from mild to severe,
PERSON 10: Beneath the surface but always near.
PERSON 11: It’s a waiting game, an uncertain fate,
PERSON 12: The hope of clear scans, until the next date.
PERSON 13: But amidst the darkness, a glimmer of light,
PERSON 14: The strength of the human will to fight.
PERSON 15: The love of family, the support of friends,
PERSON 16: With the power of research, we’ll find an end.
PERSON 17: For each VHL warrior, it’s a heavy load,
PERSON 18: But with faith and courage, it can be slowed.
PERSON 19: So let’s come together, hand in hand,
PERSON 20: To face this disease and make our stand.
Instructions for video submissions:
Please film yourself rather than having someone film you, follow instructions below (example video is below):
- Hold out your mobile using your left arm (don’t worry if your arm is in the video), capture via video from the front. Go to video mode to capture.
- Ensure no background noise (i.e. washing machine/kids etc.)
- Use a plain background (such as a white wall)
- Record in landscape and ensue your nose is central both vertically and horizontally
- Start recording for 5-10 seconds at start and end before speaking
- Don’t worry about cropping/clipping the video, please send the file as we’ll do this during editing
- Please wear any clothes you feel comfortable in but, try avoiding brand names/logos
- Please speak slowly and project your voice as if you were speaking to someone across the room.
- As this is for a poem, please speak clearly and bring emotion to your video.
Any questions, please contact us. We appreciate your participation in this project.
Example video:
