17/09/2024 NEWS SHOPPER “Bexley mum with Von Hippel-Lindau celebrates victory over new drug”
5/09/2024 THE TIMES “Drug gives patients with rare tumour-causing disease hope at last”
5/09/2024 NICE WIREDGOV “Adults with Von Hippel-Lindau disease to benefit from new treatment”
5/09/2024 BRAIN TUMOUR RESEARCH “New treatment for rare disease that causes brain tumours”
5/09/2024 Pharmaceutical Technology “NHS England offers MSD belzutifan for von Hippel-Lindau disease”
6/09/2024 Nation Health Executive NHE “NICE makes two landmark approvals”
5/09/2024 Action Kidney Cancer *Belzutifan available on the NHS for patients with VHL disease”
9/10/2023 Scottish Medicines Consortium “belzutifan (Welireg®) is accepted for use within NHSScotland”
9/10/2023 VHL UK/Ireland “https://vhl-uk-ireland.org/belzutifan-smc-approval/”
9/10/2023 Action Kidney Cancer “SMC approves belzutifan for VHL kidney cancer in Scotland”
9/10/2023 European Pharmaceutical Review “MSD medicine accepted for use in Scotland”
9/10/2023 Samedan Pharmaceutical Publishers “MSD’s WELIREG▼(belzutifan) made available for the treatment of eligible adults with von Hippel-Lindau (VHL) disease in Scotland”
9/10/2023 pharmaphorum “Scotland first in Europe to back MSD drug for VHL tumours”
7/04/2009 EXPRESS “I want to save my girls from genetic timebomb”