Press News Releases

17/09/2024NEWS SHOPPER “Bexley mum with Von Hippel-Lindau celebrates victory over new drug”
5/09/2024VHL UK/Ireland “Game-Changing Drug, Belzutifan (Welireg), Recommended with Managed Access for Von Hippel-Lindau Patients in England”
5/09/2024NHS ENGLAND “First ever drug approved for NHS patients with life-threatening genetic, tumour-causing disease”
5/09/2024THE TIMES “Drug gives patients with rare tumour-causing disease hope at last”
5/09/2024NICE WIREDGOV “Adults with Von Hippel-Lindau disease to benefit from new treatment”
5/09/2024BRAIN TUMOUR RESEARCH “New treatment for rare disease that causes brain tumours”
5/09/2024Pharmaceutical Technology “NHS England offers MSD belzutifan for von Hippel-Lindau disease”
6/09/2024Nation Health Executive NHE “NICE makes two landmark approvals”
5/09/2024Action Kidney Cancer *Belzutifan available on the NHS for patients with VHL disease”
9/10/2023Scottish Medicines Consortium “belzutifan (Welireg®) is accepted for use within NHSScotland”
9/10/2023VHL UK/Ireland “SMC Approval of belzutifan(Welireg) for selected VHL Patients”
9/10/2023Action Kidney Cancer “SMC approves belzutifan for VHL kidney cancer in Scotland”
9/10/2023European Pharmaceutical Review “MSD medicine accepted for use in Scotland”
9/10/2023Samedan Pharmaceutical Publishers “MSD’s WELIREG▼(belzutifan) made available for the treatment of eligible adults with von Hippel-Lindau (VHL) disease in Scotland”
9/10/2023pharmaphorum “Scotland first in Europe to back MSD drug for VHL tumours”
7/04/2009EXPRESS “I want to save my girls from genetic timebomb”
VHL UK/Ireland

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