Events

Join us this VHL Awareness Month to run, walk or cycle 5k & upload your #vforvhl photo & nominate a further two people to join in. Let's get this viral!

An informal virtual coffee morning to be held twice a year, first one taking place during our Awareness Month in 2021. A chance to share your story, seek support & catch up amongst us all. All VHL patients, friends & families welcome.

VHLA is hosting a global MyVHL Day where people affected by VHL will (virtually) unite for a common cause: participating in MyVHL and helping VHL researchers learn more about the disease and it's impact.  Be a part of a sea of change by participating in MyVHL.

Back by popular demand, we are pleased to announce the date of this year's VHL Virtual Pub Quiz. Hosted by one of our trustees Frankie & her husband Dean, it's sure to be a fun night!

Join us at the Mercure Sheffield Parkway Hotel for a day dedicated to supporting individuals with VHL in the UK and Ireland. This in person event will be filled with informative sessions by clinical experts, on some very important topics including Belzutifan and dealing with the mental burden of a chronic illness. The day will …