News
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VHL Research Patient Day
On the 30th June a VHL UK/Ireland support and information meeting was held in the Bateson Centre in the University of Sheffield. A group headed by Dr. Freek van Eeden, a Dutch scientist, who is studying this disease and the function of the VHL gene presented aspects of their work to the group. Dr. van…
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Second Support Group Meeting held in Saint Mary’s Hospital, Manchester
30 people + 1 dog attended our second arranged support meeting at Saint Mary’s Hospital, Manchester. Guest speakers included researchers, genetic counsellorteam, charity members and consultants:10.00 – Registration – Tea & coffee11.00 – Welcome from VHL UK/Ireland11.30 – Dr Emma Woodward on Research12.30 – Lunch13.30 – Fiona Lalloo – Information on PGD14.00 – Q&A with…
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First Support Group Meeting held in Guy’s Hospital, London
28 people attended our first arranged support meeting at Guy’s Hospital, London. 10.30 – Session opens – Registration – Tea & coffee provided11.00 – Welcome11.00 – Pre-implantation Genetic Diagnosis by Alison Lashwood, Clinical Lead PGD at Guy’s Hospital11.45 – VHL & Research by Carl Spickett, part of Professor Eamonn Maher’s research team at Addenbrooke’s Hospital12.30…
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VHL Awareness Month May 2015 is a success
VHL UK/Ireland would like to thank everyone who took part in raising awareness during VHL Awareness Month – May 2015. The event saw VHL patients, families and supporters throughout the UK, Ireland and beyond get involved in various ways. Claire Hobson and team climbing Ben Nevis, Scotland 2015The month was not short of fantastic fundraisers…