Board of Trustees
EVERY member of the Charity is a VOLUNTEER, giving their own time freely and without seeking any form of recompense.
ALL members are patients living with, and/ or carers for those with, VHL or HLRCC
Chair
Mark Lodge – Belzutifan Lead
Secretary
Open
Co-Chairs
Graham Lovitt – Special Advisor
Janice Hepworth – Treasurer / Finance Lead
Roxanne Bonin – Marketing Lead
Nancy Molyneaux – Patient Liaison
Sue Carless (from Feb 2027) – Clinical Liaison
Dr Tony Horton PhD – Scientific Adviser
Tantara Fox-Stillwell – Operations Lead
Frankie Goddard – Fundraising Lead
Kim Vaughan – Regulatory & Governance Lead
Additional Board Members
John Hepworth
Joyce Bonin – Merchandise / Shop Manager
and, of course, “Charlie” the Mascot
