Archives: News

Vixstar Charity Masquerade Ball on Saturday 30th September 2017

ANNOUNCEMENT – Tickets are now on sale for this year’s Charity Masquerade Ball on Saturday 30th September 2017 at Holiday Inn Peterborough West! Tickets are priced at £45 each or £40 each for a table of 10 and include a welcome drink, 3 course meal, entertainment, photographer and much more. To order your tickets please […]

Rare Disease Day February 28th, 2017

Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care. On 28 February 2017, the tenth edition of Rare Disease Day will see thousands of people from all over the world come together to advocate for more research on rare diseases. Over […]

VHL UK/Ireland Charity Christmas Cards now in stock

VHL UK/Ireland Charity Christmas Cards now in stock – order yours today! Support the charity with our bespoke Christmas Cards, only £3.50. Each pack of 10 feature two designs and 10 envelopes. 100% of profit will be donated to VHL UK/Ireland. Click here to order

Second Support Group Meeting held in Saint Mary’s Hospital, Manchester, October 2016

30 people + 1 dog attended our second arranged support meeting at Saint Mary’s  Hospital, Manchester. – Connect with other patients and families – Patients, family and friends welcome – Lunch and refreshments provided Guest speakers included researchers, genetic counsellor team, charity members and consultants: 10.00 – Registration – Tea & coffee 11.00 – Welcome […]

New 2-year Target of £80,000

  The £40,000 fundraising goal has been reached for this financial year. We have been in touch with Prof Eamonn Maher’s Cambridge research team and they have asked if we can continue fundraising towards an even more prominent piece of equipment. We have also offered, as an alternative, to help fund a piece of related […]

First Support Group Meeting held in Guy’s Hospital, London

28 people attended our first arranged support meeting at Guy’s Hospital, London. 10.30 – Session opens – Registration – Tea & coffee provided 11.00 – Welcome 11.00 – Pre-implantation Genetic Diagnosis by Alison Lashwood, Clinical Lead PGD at Guy’s Hospital – Slides 11.45 – VHL & Research by Carl Spickett, part of Professor Eamonn Maher’s […]

Target of Thirty Thousand Pounds – £30,000 Broken

  The VHL UK/Ireland Committee of Trustees on Aug 24th, 2015 set a new fund-raising target of £30,000 for the financial year ending April 5th, 2016. It was thought the target sum was ambitious, but achievable.

VHL UK/Ireland reaches it’s £5,000 target!

Over £5,000 has been raised for VHL UK/Ireland this year, enabling the charity to apply for registered status. All funds are being donated to research into VHL disease and similar conditions BHD and HLRCC by Eammon Maher, Head of the Department of Medical Genetics, Cambridge. The charity would like to thank all fundraisers this year […]

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