Category: Patient Support

Dublin Support Group Meeting April 3rd 2017

Dublin Support Group Meeting When: April 3rd @ 12.30-4.30 Where: Tolka Room in the Centre for Learning & Development (CLD), Tallaght Hospital Guest Speakers for the Day Joyce Graff: President and Host at Powerful Patient/ Former Founder and Director of VHL Alliance Mike Kelly: Counsellor with the Irish Kidney Association since 2006 Looking forward to […]

Second Support Group Meeting held in Saint Mary’s Hospital, Manchester, October 2016

30 people + 1 dog attended our second arranged support meeting at Saint Mary’s  Hospital, Manchester. – Connect with other patients and families – Patients, family and friends welcome – Lunch and refreshments provided Guest speakers included researchers, genetic counsellor team, charity members and consultants: 10.00 – Registration – Tea & coffee 11.00 – Welcome […]

First Support Group Meeting held in Guy’s Hospital, London

28 people attended our first arranged support meeting at Guy’s Hospital, London. 10.30 – Session opens – Registration – Tea & coffee provided 11.00 – Welcome 11.00 – Pre-implantation Genetic Diagnosis by Alison Lashwood, Clinical Lead PGD at Guy’s Hospital – Slides 11.45 – VHL & Research by Carl Spickett, part of Professor Eamonn Maher’s […]

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