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PRODID:-//VHL UK-IRL - ECPv6.17.2//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://vhl-uk-ireland.org
X-WR-CALDESC:Events for VHL UK-IRL
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UID:3494-1742637600-1742659200@vhl-uk-ireland.org
SUMMARY:VHL Patient Day Sheffield 22 March 2025
DESCRIPTION:Join us at the Mercure Sheffield Parkway Hotel for a day dedicated to supporting individuals with VHL in the UK and Ireland. \n\n\n\nThis in person event will be filled with informative sessions by clinical experts\, on some very important topics including Belzutifan and dealing with the mental burden of a chronic illness. \n\n\n\nThe day will also provide you with the opportunity to connect with other families facing similar challenges. Whether you’re newly diagnosed or a long time VHL warrior\, this day is for you. \n\n\n\nCome together with our community to learn\, share\, and support one another on this journey. We can’t wait to see you there!
URL:https://vhl-uk-ireland.org/event/vhl-patient-day-sheffield-22-march-2025/
LOCATION:Mercure Sheffield Parkway\, Britannia Way\, Catcliffe\, Sheffield\, S60 5BD\, United Kingdom
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210527T200000
DTEND;TZID=Europe/London:20210527T210000
DTSTAMP:20210427T195559Z
CREATED:20210427T195554Z
LAST-MODIFIED:20210427T195559Z
UID:2341-1622145600-1622149200@vhl-uk-ireland.org
SUMMARY:Virtual Pub Quiz
DESCRIPTION:Back by popular demand\, we are pleased to announce the date of this year’s VHL Virtual Pub Quiz. Hosted by one of our trustees Frankie & her husband Dean\, it’s sure to be a fun night!
URL:https://vhl-uk-ireland.org/event/virtual-pub-quiz/
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210522T000000
DTEND;TZID=Europe/London:20210522T235959
DTSTAMP:20210427T200519Z
CREATED:20210418T220205Z
LAST-MODIFIED:20210427T200519Z
UID:2312-1621641600-1621727999@vhl-uk-ireland.org
SUMMARY:MyVHL Day
DESCRIPTION:VHLA is hosting a global MyVHL Day where people affected by VHL will (virtually) unite for a common cause: participating in MyVHL and helping VHL researchers learn more about the disease and it’s impact.  Be a part of a sea of change by participating in MyVHL.
URL:https://vhl-uk-ireland.org/event/myvhl-day/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210509T110000
DTEND;TZID=Europe/London:20210509T120000
DTSTAMP:20210503T210050Z
CREATED:20210427T194727Z
LAST-MODIFIED:20210503T210050Z
UID:2339-1620558000-1620561600@vhl-uk-ireland.org
SUMMARY:Virtual Coffee Morning
DESCRIPTION:An informal virtual coffee morning to be held twice a year\, first one taking place during our Awareness Month in 2021. A chance to share your story\, seek support & catch up amongst us all. All VHL patients\, friends & families welcome.
URL:https://vhl-uk-ireland.org/event/virtual-coffee-morning/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210501T000000
DTEND;TZID=Europe/London:20210531T235959
DTSTAMP:20210427T200142Z
CREATED:20210427T200138Z
LAST-MODIFIED:20210427T200142Z
UID:2343-1619827200-1622505599@vhl-uk-ireland.org
SUMMARY:#VforVHL
DESCRIPTION:Join us this VHL Awareness Month to run\, walk or cycle 5k & upload your #vforvhl photo & nominate a further two people to join in. Let’s get this viral!
URL:https://vhl-uk-ireland.org/event/vforvhl/
END:VEVENT
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