VHL UK Ireland has granted £40,000 to this study which is paramount to the understanding of genetic conditions such as VHL and other kidney genes. Please find a progress update below.
Author: VHLWarrior
Project – UK Registry for VHL disease and other Inherited kidney tumour syndromes
VHL UK Ireland have granted an amazing £40,000 for this project. Please read below for an update on this fantastic project. It’s projects and research like this that will help others in the future!
Vixstars Events VHL UK Irleand & Alzheimer’s Charity Ball 2019 raised £7000!
A HUGE thank you to all who contributed to the success of the 2019 charity ball. An amazing £7000 was raised for VHL UK/Ireland and Alzheimers UK!
Anthony Devereux helps raise over £1000 for VHL UK Ireland!
Anthony Devereux from near Middlesborough has successfully raised over £1000 for VHL UK Ireland! Anthony and friends organised a fantastic circus themed fundraiser at the Bluebell Hotel on the 28th September 2019.
Help Us Raise Awareness Video
VHL UK/Ireland Awareness and Support Video. Our mission is to raise funds for research, to support those affected by VHL HLRCC and BHD, and to raise awareness. The cure for cancer is in our genes. Together we will find the cure. https://www.vhl-uk-ireland.org
GiveAsYouLive & earn FREE donations for us!
Heading for a European Christmas market or just fancy some Winter sun? Click via @GiveasyouLive when you book travel, hotel rooms and much more and you’ll earn FREE donations for us!
Lauren is picking up her pumps! Highland Dance Competition 3rd November 2019
I have decided to fundraise for VHL as this condition affects so many people yet very few people know of it. Someone this condition affects is one of my oldest and dearest friends Lynsey we have been friends since the age of 3 and she’s still stuck with me. Lynsey along with some of her […]
Help and support when i needed it!
Since my diagnosis of VHL I have undergone four brain surgeries, three eye surgeries and three kidney surgeries. I am a positive individual and always try to look forward each day as well as a proud person who rarely asks for help; but this time around, I had to ask. Since losing both kidneys due […]
An exciting new website for VHL UK/Ireland coming soon!
An exciting new website for VHL UK/Ireland coming soon! Here is a sneaky peak! vhlwarrior vhlukireland vhlawareness ❤️
Did you know we can post get well soon cards to patients and vhlwarriors on behalf of the charity?
Did you know we can post get well soon cards to patients and vhlwarriors on behalf of the charity? Simply email uk@vhl-uk-ireland.org or private message us with name and address details of where you would like it to go.