Your Story

Your Story

Whether you are a VHL, BHD and HLRCC warrior, a family member or caregiver, a friend who sees the battle their friend faces, a fundraiser inspired to complete a challenge for VHL, BHD and HLRCC , we want to hear from you.

By sharing your story, you will play a valuable role in spreading awareness of VHL, BHD and HLRCC disease and providing hope and inspiration for other patients and individuals affected.

If you are interested, please email us.


VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

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VHL UK/Ireland is a registered charity in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346