Your Story

Your Story

Whether you are a VHL, BHD and HLRCC warrior, a family member or caregiver, a friend who sees the battle their friend faces, a fundraiser inspired to complete a challenge for VHL, BHD and HLRCC , we want to hear from you.

By sharing your story, you will play a valuable role in spreading awareness of VHL, BHD and HLRCC disease and providing hope and inspiration for other patients and individuals affected.

If you are interested, please email us.

vhl-uk-ireland-vhl-awareness-month-share-patient-story

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

Find out more →

Copyright © 2013 - 2018

VHL UK/Ireland is a registered charity in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346