Support Groups

Upcoming patient and family support groups 

Since VHL UK/Ireland re-launched, part of our aim is to provide support for patients and families. Support groups enable patients to meet other patients, families, genetic counsellors, researchers, consultants and more, whilst gaining valuable knowledge on various relevant topics. 


2018 Support Group

VHL Support Group is provisionally booked for Saturday 17th November at Addenbrooke’s Hospital, Cambridge. To provisionally register your interest, please email us.

Patient Research Day – not a Support Group, but another great way to meet other patients and find out more about VHL-based researched. Find out more 

Previous support groups

Saturday 4th November 2017 – Queen Elizabeth Hospital, Glasgow
Saturday 22nd October 2016 – Saint Mary’s Hospital, Manchester
Saturday 14th November 2015 – Guy’s Hospital London


VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

Find out more →

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VHL UK/Ireland is a registered charity in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346