1st June 2015

VHL Awareness Month May 2015 is a success

VHL UK/Ireland would like to thank everyone who took part in raising awareness during VHL Awareness Month – May 2015. The event saw VHL patients, families and supporters throughout the UK, Ireland and beyond get involved in various ways.
The month was not short of fantastic fundraisers including Amy Henson completed the MK Half Marathon, raising over £500 and Claire Hobson and her team of 27 climbed Ben Nevis, raising over a fantastic £10,000.


The charity’s Facebook description of VHL disease was shared over 500 times and reached over 18,000 people, with the Willem Defo video viewed over 6,000 times. The month also saw a significant rise if merchandise sales, as supporters took to raising awareness with clothing and pin badges.

To find out how you can carry on raising awareness, please visit the VHL Awareness Month page or our Fundraise page.

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

Find out more →

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VHL UK/Ireland Charity is registered in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346