22nd October 2016

Second Support Group Meeting held in Saint Mary’s Hospital, Manchester

30 people + 1 dog attended our second arranged support meeting at Saint Mary’s  Hospital, Manchester.

– Connect with other patients and families
– Patients, family and friends welcome
– Lunch and refreshments provided

Guest speakers included researchers, genetic counsellor
team, charity members and consultants:
10.00 – Registration – Tea & coffee
11.00 – Welcome from VHL UK/Ireland – Slides
11.30 – Dr Emma Woodward on Research
12.30 – Lunch
13.30 – Fiona Lalloo – Information on PGD
14.00 – Q&A with Kath Wallis/Fiona Lalloo
15.00 – Tea & coffee
16.00 – Session Closes
17.00 – Optional meal at The Rampart Lion

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

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VHL UK/Ireland Charity is registered in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346