7th June 2015

Genetic Centres in UK and Ireland to receive patient information packs

Each listed Genetic Centre that manages VHL, HLRCC and BHD patients will receive information packs, containing information cards to pass on to patients.
Both newly diagnosed and existing patients and families will now be aware that there is support available. Each Genetic Centre should have the information pack from June 2015 onwards.
Find your nearest Genetic Centre.

 

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

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VHL UK/Ireland Charity is registered in England and Wales 1160381 and Ireland 2010139

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