14th November 2015

First Support Group Meeting held in Guy's Hospital, London

28 people attended our first arranged support meeting at Guy’s Hospital, London.

10.30 – Session opens – Registration – Tea & coffee provided
11.00 – Welcome
11.00 – Pre-implantation Genetic Diagnosis by Alison Lashwood, Clinical Lead PGD at Guy’s Hospital – Slides
11.45 – VHL & Research by Carl Spickett, part of Professor Eamonn Maher’s research team at Addenbrooke’s Hospital – Slides
12.30 – Lunch provided
1.30 – Update on VHL UK/Ireland from Graham Lovitt & Roxanne Bonin – Charity’s Co-Chairs – Slides
1.40 – Personal HLRCC experience and update on VHL Research from Dr. Tony Horton – Charity’s Scientific Adviser
2.00 – Q&A by Sally Watts, Lead Genetic Counsellor at Guy’s Hospital
3.00 – Session closes
A big thank you to the speakers, to Guy’s Hospital Staff and to Roxanne Bonin and all her family for the arrangements, and all the attendees for making a very enjoyable and informative day.

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

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VHL UK/Ireland is a registered charity in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346