Media awareness

Media awareness

UK and Ireland VHL, HLRCC and BHD patients news stories as featured in the media. You can raise awareness in the media by simply talking about your fundraising efforts or by sharing your story.

If you have a news story to add, please email us.

News stories to date:

Young Biggleswade brain tumour survivors’ charity ball raises more than £4,000. Read more

Local Mum sets sights on crowdfunding £5,000 to help her daughter through surgery in the US. Read more

Woman battling rare genetic disease along with her children set to walk the West Highland Way to raise awareness. Read more

Miracle on 34th Street winner: Girl whose mum is recovering from brain tumour wins part in show. Read more

Chloe has a confidence-boosting wish following a devastating diagnosis that causes tumours to grow in her body. Read more

Sister of Anglesey man to run half marathon in his memory. Read more

Lesley Batley discovered she was suffering from Von Hippel Lindau syndrome, a rare genetic disease – and her whole family was at risk. Read more

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

Find out more →

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VHL UK/Ireland is a registered charity in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346