UK and Ireland VHL, HLRCC and BHD patients news stories as featured in the media. You can raise awareness in the media by simply talking about your fundraising efforts or by sharing your story.
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Young Biggleswade brain tumour survivors’ charity ball raises more than £4,000. Read more
Local Mum sets sights on crowdfunding £5,000 to help her daughter through surgery in the US. Read more
Woman battling rare genetic disease along with her children set to walk the West Highland Way to raise awareness. Read more
Miracle on 34th Street winner: Girl whose mum is recovering from brain tumour wins part in show. Read more
Chloe has a confidence-boosting wish following a devastating diagnosis that causes tumours to grow in her body. Read more
Sister of Anglesey man to run half marathon in his memory. Read more
Lesley Batley discovered she was suffering from Von Hippel Lindau syndrome, a rare genetic disease – and her whole family was at risk. Read more