Mari Nelson is running the Edinburgh Marathon 28th May 2017

As I am now the prime age of 22 I have decided to do something worthwhile and try and run a long distance to raise some money for charity. I have decided to fundraise for VHL UK/Ireland, which is a charity for those affected by von Hippel-Lindau (VHL) syndrome. This is a rare genetic disorder that runs in my family, which is why I would like to support it. Additionally the gene that is involved in VHL is also involved in more common cancers, so it is thought that if the mutation that causes VHL can be overcome then they might be able to do the same for other cancers. I would like to raise some money to fund research as well as raise awareness about the disease.

Event details

Edinburgh Marathon

I will be running 26.2 miles around my new home Edinburgh, around extinct volcanoes and golf courses.

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VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

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VHL UK/Ireland is a registered charity in England and Wales 1160381 and Ireland 2010139

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