What is VHL disease?

VHL Awareness Month supports von Hippel Lindau disease. VHL is a lifelong condition characterised by blood vessel tumours in up to ten areas of the body, which can be benign or cancerous.


How to get involved with VHL Awareness Month

1. Spread the message

2. Wear your VHL Disease pin badge or VHL UK/Ireland merchandise

  • We have special edition bundles – view now
  • Make sure to wear your VHL Disease pin badge and merchandise to spread awareness
  • With every t-shirt, vest or hoodie purchased in May, you will receive a FREE pin badge
  • Send your photo of you wearing your pin badge or clothing to us via email: uk@vhl.org and we will add to our ‘Spreading Awareness of VHL Disease’ album on Facebook and our website.
  • Items are available to be shipped worldwide. Visit the online shop to find out more.

3. Fundraise – raise awareness and funds at the same time

  • Whether it’s a bake sale, sponsored run, workplace ‘dress down’ day, it is a fantastic opportunity to raise awareness for VHL disease and funds at the same time.
  • Find out how to fundraise.
  • Download a VHL UK/Ireland fundraising form to print and use – brilliant to use around the workplace or to pin to a noticeboard.

4. Donate or collect funds and donate directly to VHL UK/Ireland

Donate funds here

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

Find out more →

Copyright © 2013 - 2019

VHL UK/Ireland is a registered charity in England and Wales 1160381 and Ireland 2010139

Charity Trust No: CT54346