VHL UK/Ireland Committee Members
Graham Lovitt – Trustee, Chair
Janice Hepworth – Trustee, Co-Chair, Secretary
Nat Mason – Trustee, Co-Chair, Treasurer
Roxanne Bonin – Trustee, Co-Chair, Marketing & Fundraising Officer
Gloria Proby – Trustee, Co-Chair
Amy Henson – Trustee, Social Media Co-ordinator
Elaine Graham – Trustee
Ellen Wentworth – Trustee
John Hepworth – Trustee
Tony Horton – Trustee, Scientific Adviser
The committee can be contacted by email
The VHL UK/Ireland Constitution defines four classes of membership. Membership is open to everyone with an interest in the work of the charity.
1. Full membership
This includes voting rights (one per branch/organisation) and is open to voluntary sector and charitable organisations whose primary aim is to improve the quality of life for people affected by VHL and similar genetic conditions like HLRCC and BHD.
2. Associate membership
With no voting rights, membership is open to organisations with some responsibility for the provision, commissioning or development of services for the welfare of people affected by VHL and similar genetic conditions like HLRCC and BHD.
3. Full individual membership
This includes voting rights and is open to anyone diagnosed with VHL and similar genetic conditions like HLRCC and BHD, or directly affected by such a diagnosis, including families, friends and carers.
Contact us to apply for membership.
Committee Meeting November 1, 2018(Draft)
Annual General Meeting May 24th, 2018(Draft)