Support and information for VHL, BHD and HLRCC patients, caregivers and families
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VHL UK/Ireland aims to raise funds for key research into the disease and similar genetic conditions
Read more on key researchers
There are lots of ways to get involved, from bake sales to sponsored runs - find out how to get involved
On 28 February 2017, the tenth edition of Rare Disease Day will see thousands of people from all over the world come together to advocate for more research on rare diseases.